Sickle Cell Awareness Project (SCAP)

During the height of the COVID-19 pandemic, Weren'tBornRich CIC, in collaboration with The National Lottery Community Fund, launched the Sickle Cell Awareness Project (SCAP) — a powerful initiative aimed at raising awareness around the lived experiences of individuals with sickle cell anaemia.

The goal of SCAP was to shed light on the daily challenges faced by people living with sickle cell in hospital settings, the workplace, and educational environments. Through storytelling, creative expression, and direct dialogue, the project amplified voices that are too often unheard giving the wider public, professionals, and policymakers a chance to understand the real-life impact of this lifelong condition.

Due to COVID-19 restrictions, the final showcase event, originally planned as an in-person gathering, was adapted into an online Zoom event. Despite the change in format, the event was a great success, with a strong turnout and rich engagement.

A highlight of the event was a live Q&A session with Professor Paul Telfer, a renowned haematologist, who spoke passionately about the ways in which hospitals and healthcare staff can better support sickle cell patients both clinically and emotionally.

The event was held on 10/07/2021 and took place both at 75 Derby Road, Forest Gate, E7 8NH and virtually, making it accessible to audiences both in the UK and internationally, including Uganda.

SCAP not only brought awareness to important issues but also created a sense of community and empowerment among those affected by sickle cell anaemia. It marked an important step in Weren'tBornRich's continued efforts to advocate, educate, and support those living with the condition.